Motivation vs. Hopelessness: The Well-Being Following Predictive Testing for Huntington’s Disease
DOI:
https://doi.org/10.47611/jsrhs.v12i4.5783Keywords:
Huntington's Disease, Gene-positive, Predictive testing, Presymptomatic, Young adults, Motivation, Hopelessness, Genetic counseling, Decisional regretAbstract
Predictive genetic testing for Huntington’s Disease, a fatal and progressive neurodegenerative disorder with no cure, can lead to a multitude of favorable and unfavorable responses, impacts, and experiences. Utilizing many qualitative studies, participants’ reactions to their gene-positive test results were categorized into the opposing psychological states of motivation vs. hopelessness. Key milestones of adulthood, such as education and career, romantic and familial relationships, reproductive choices, and financial investments, were used as metrics for the two categories. By studying the psychological well-being of at-risk individuals for Huntington’s, this literature review also argues for the use and improvement of long-term, tailored genetic counseling.
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